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Negotiating Bioethics
The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out ...
The Gene, the Clinic, and the Family
While some theorists argue that medicine is caught in a relentless process of ‘geneticization’ and others offer a thesis of biomedicalization, there is still little research that explores how these effects are accomplished in practice. Joanna Latimer, whose groundbreaking ethnography on acute medicine gave us the social science classic The Conduct of Care, moves her focus from the bedside to the clinic in this in-depth study of genetic medicine. Against current thinking that proselytises the rise of laboratory science, Professor Latimer shows how the genetic clinic is at the heart of the revolution in the new genetics. Tracing how work on the abnormal in an embryonic genetic science, dys...
Risky Genes
What does it mean to be told you have an increased risk of genetic breast cancer because you are of Ashkenazi Jewish origin? In a time of ever increasing knowledge about variations in genetic disease risk among different populations, there is a pressing need for research regarding the implications of such information for members of high-risk populations. With first hand, intimate descriptions of women's experiences of being Jewish and of being at increased risk of genetic breast cancer, this book offers new insight into the ongoing debates regarding the implications of genetic research for populations, and of new genetic knowledge for individual and collective identity.
COVID-19 and World Order
Leading global experts, brought together by Johns Hopkins University, discuss national and international trends in a post-COVID-19 world. The ongoing COVID-19 pandemic has killed hundreds of thousands of people and infected millions while also devastating the world economy. The consequences of the pandemic, however, go much further: they threaten the fabric of national and international politics around the world. As Henry Kissinger warned, "The coronavirus epidemic will forever alter the world order." What will be the consequences of the pandemic, and what will a post-COVID world order look like? No institution is better suited to address these issues than Johns Hopkins University, which has...
Gender and Genetics
Prenatal screening for genetic disorders has become increasingly widespread in the UK. This book gives a unique and systematic analysis of the gendered nature of genetic screening, focusing on the experiences of both women and men.
The New Politics of Fatherhood
This book makes a unique contribution to contemporary research into masculinities, men’s movements, and fathers’ rights groups. It examines the role of changing masculinities in creating equality and/or reinforcing inequality by analysing diverse men’s movements, their politics, and the identities they (re)construct. Jordan advances a typology for categorising men’s movements (‘feminist', ‘postfeminist', and ‘backlash’ movements) and addresses debates over the construction of ‘masculinity-in-crisis’, arguing that ‘crisis’ is frequently invoked in problematic ways. These themes are further explored through original analyses of material produced by ‘feminist’, ‘po...
Global Bioethics
The panorama of bioethical problems is different today. Patients travel to Thailand for fast surgery; commercial surrogate mothers in India deliver babies to parents in rich countries; organs, body parts and tissues are trafficked from East to Western Europe; physicians and nurses migrating from Africa to the U.S; thousands of children or patients with malaria, tuberculosis and AIDS are dying each day because they cannot afford effective drugs that are too expensive. Mainstream bioethics as it has developed during the last 50 years in Western countries is evolving into a broader approach that is relevant for people across the world and is focused on new global problems. This book provides an...
Science and Democracy
In the life sciences and beyond, new developments in science and technology and the creation of new social orders go hand in hand. In short, science and society are simultaneously and reciprocally coproduced and changed. Scientific research not only produces new knowledge and technological systems but also constitutes new forms of expertise and contributes to the emergence of new modes of living and new forms of exchange. These dynamic processes are tightly connected to significant redistributions of wealth and power, and they sometimes threaten and sometimes enhance democracy. Understanding these phenomena poses important intellectual and normative challenges: neither traditional social sci...
Prehospital Research Methods and Practice
Bringing together a team of leading international experts in the field of research, this book provides an up-to-date and accessible overview of applied research methods in the prehospital environment. Written to support the needs of the paramedicine, emergency medicine and wider healthcare communities in this rapidly advancing research setting, the authors introduce the key areas of research design and methods, evidence-based practice, ethics and quality improvement for both the novice and the more advanced researcher. Relevant examples of prehospital research are also included to fully explain and illustrate the key approaches. High-quality, robust evidence is of the utmost importance to inform prehospital clinical practice and ensure better patient care. This book is essential reading for anyone interested in undertaking research within the prehospital or emergency care setting, including undergraduate and postgraduate students in paramedic science, medicine, nursing and allied health.
Barcoding Nature
DNA Barcoding has been promoted since 2003 as a new, fast, digital genomics-based means of identifying natural species based on the idea that a small standard fragment of any organism's genome (a so-called "micro-genome") can faithfully identify and help to classify every species on the planet. The fear that species are becoming extinct before they have ever been known fuels barcoders, and the speed, scope, economy and "user-friendliness" claimed for DNA barcoding, as part of the larger ferment around the "genomics revolution", has also encouraged promises that it could inspire humanity to reverse its biodiversity-destructive habits. This book is based on six years of ethnographic research o...
