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Fasten Your Seatbelt
Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Ma...
Diversity in Medicine
The days when white men filled physician positions and nurses were expected to be only women are far behind us. A far more diverse team of employees populates today's medical facilities. This edifying volume highlights the rocky road traversed by so many to get where we are today, as well as the gaps that continue to exist, supported by eye-opening statistics. Inspiring figures featured throughout emphasize the hard work and perseverance of some of medicine's most brilliant and determined figures, such as revolutionary ophthalmologist Patricia Bath and physician Kumar Bahuleyan. Dr. Bahuleyan used his skills and wealth to bring medical care to his poverty-stricken hometown.
Disability, Health, Law, and Bioethics
Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.
Communication and Bioethics at the End of Life
This casebook provides a set of cases that reveal the current complexity of medical decision-making, ethical reasoning, and communication at the end of life for hospitalized patients and those who care for and about them. End-of-life issues are a controversial part of medical practice and of everyday life. Working through these cases illuminates both the practical and philosophical challenges presented by the moral problems that surface in contemporary end-of-life care. Each case involved real people, with varying goals and constraints,who tried to make the best decisions possible under demanding conditions. Though there were no easy solutions, nor ones that satisfied all stakeholders, there are important lessons to be learned about the ways end-of-life care can continue to improve. This advanced casebook is a must-read for medical and nursing students, students in the allied health professions, health communication scholars, bioethicists, those studying hospital and public administration, as well as for practicing physicians and educators.
Feminist, Queer, Crip
In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.
The Degenerates
In 1928, Maxine, Rose, Alice, and London face vicious attendants and bullying older girls at the Massachusetts School for the Feeble-Minded, each determined to change her fate at all costs. Includes historical notes about eugenics.
Voting and Faithfulness
Fifteen essays aimed at voters on a variety of topics such as faithful citizenship, how Catholics perceive and talk about issues such as war, life issues, character issues, and how our bishops teach.
Disabilities and Disorders in Literature for Youth
One in every five Americans lives with at least one disability or disorder, including both the obvious, such as those requiring the use of a wheelchair, and the less evident ones, such as eating disorders or Asperger's syndrome. Those responsible for teaching disabled students and providing services and support for them need ready access to reliable and up-to-date resources. Disabilities and Disorders in Literature for Youth: A Selective Annotated Bibliography for K-12 identifies almost 1,000 resources to help educators, professionals, parents, siblings, guardians, and students understand the various disabilities and disorders faced by children today. This bibliography consists of four major...
Raising Henry
Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, "Raising Henry" is also an...
Against Health
Navigates the divergent cultural meanings of health, and its entanglement with morality in current political discourse You see someone smoking a cigarette and say,“Smoking is bad for your health,” when what you mean is, “You are a bad person because you smoke.” You encounter someone whose body size you deem excessive, and say, “Obesity is bad for your health,” when what you mean is, “You are lazy, unsightly, or weak of will.” You see a woman bottle-feeding an infant and say,“Breastfeeding is better for that child’s health,” when what you mean is that the woman must be a bad parent. You see the smokers, the overeaters, the bottle-feeders, and affirm your own health in th...
