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Fasten Your Seatbelt
Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Ma...
Bodies of Knowledge
Spanning the countries of South Africa, Swaziland, and Ghana, this collection of work brings into focus child and youth experience together as a collage of anthropology, creative writing, poetry, and the fine arts. Woven together by questions related to the political economy of child and youth well-being, identity formation, and the multiple layers through which children articulate their health-narrative, ‘ Bodies of Knowledge’ considers living in and coping with chronic illness, spirit-possession, and death. The growth in Critical Health Humanities and the Arts globally, suggests the desire for blended efforts to draw in a wider breadth of knowledge that cuts across the divided worlds of critical social science and the arts. This book, set in an African context, offers myriad possibilities for cross-disciplinary synergies as learning sites. It is a critical contribution to the field of children and childhood studies.
Towards an Ethic of Autism
Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtfu...
Communication and Bioethics at the End of Life
This casebook provides a set of cases that reveal the current complexity of medical decision-making, ethical reasoning, and communication at the end of life for hospitalized patients and those who care for and about them. End-of-life issues are a controversial part of medical practice and of everyday life. Working through these cases illuminates both the practical and philosophical challenges presented by the moral problems that surface in contemporary end-of-life care. Each case involved real people, with varying goals and constraints,who tried to make the best decisions possible under demanding conditions. Though there were no easy solutions, nor ones that satisfied all stakeholders, there are important lessons to be learned about the ways end-of-life care can continue to improve. This advanced casebook is a must-read for medical and nursing students, students in the allied health professions, health communication scholars, bioethicists, those studying hospital and public administration, as well as for practicing physicians and educators.
School Lunch Politics
Whether kids love or hate the food served there, the American school lunchroom is the stage for one of the most popular yet flawed social welfare programs in our nation's history. School Lunch Politics covers this complex and fascinating part of American culture, from its origins in early twentieth-century nutrition science, through the establishment of the National School Lunch Program in 1946, to the transformation of school meals into a poverty program during the 1970s and 1980s. Susan Levine investigates the politics and culture of food; most specifically, who decides what American children should be eating, what policies develop from those decisions, and how these policies might be bett...
Far From the Tree
* Selected as One of the Best Books of the 21st Century by The New York Times * * WINNER of the National Book Critics Circle Award * Books for a Better Life Award * The New York Times Book Review’s 10 Best Books of the Year * This masterpiece by the National Book Award–winning author of The Noonday Demon features stories of parents who not only learn to deal with their exceptional children, but also find profound meaning in doing so—“a brave, beautiful book that will expand your humanity” (People). Solomon’s startling proposition in Far from the Tree is that being exceptional is at the core of the human condition—that difference is what unites us. He writes about families copin...
Down Syndrome
Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom. Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21. Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung. Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome". Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.
Unborn Bodies
The afterlife continues to influence Christian faith and is a concern during fragile moments of reproductive loss. However, a doctrine of resurrection that speaks to death in the womb has yet to be considered. Ignoring fetal death began early in Christian history. The church has struggled for settled meaning regarding issues of personhood in the womb and whether unbaptized infants are saved. Believers today deserve to know the basis for a Christian hope of heaven. They deserve a nontoxic eschatology that sustains an embodied sense of self, which is fractured by the experience of reproductive loss. They deserve to know whether assenting to the resurrection of the body--including unborn bodies...
Degrees of Equality
The American Association of University Women (AAUW) is one of the nation's oldest and most influential voices for equality in education, the professions, and public life. Tracing the history of the AAUW, Susan Levine provides a new perspective on the meaning of feminism for women in mainstream liberal organizations. In so doing, she explores the problems that women confront and the strategies they have developed to achieve equal rights. Established in 1921 with the merging of two regional groups of women college graduates, the AAUW has grown to become a vital resource center for educational policy and women's concerns. While not always favoring the label "feminist," AAUW has sought to end di...
