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Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.
Provides a comprehensive overview of good practice in caring for terminally ill children, young people and their families.
A groundbreaking theoretical physicist traces his career, reflecting on the successes and failures, triumphs and insecurities of a life cut short by cancer. The groundbreaking theoretical physicist Joseph Polchinski explained the genesis of his memoir this way: “Having only two bodies of knowledge, myself and physics, I decided to write an autobiography about my development as a theoretical physicist.” In this posthumously published account of his life and work, Polchinski (1954–2018) describes successes and failures, triumphs and insecurities, and the sheer persistence that led to his greatest discoveries. Writing engagingly and accessibly, with the wry humor for which he was known, P...
Particle production is an important topic in nuclear and particle physics. At high energies, particle production is considered to proceed via parton branching and subsequent fragmentation into hadrons. The study of the dynamics of this process and the study of the structure of hadrons in the context of quantum chromodynamics (QCD) belong to the challenges of the standard model of elementary particle physics, requiring new, nonperturba tive approaches in field theory. Within a nucleus, many-body dynamics is important and particle production may be used to determine many features of a non-equilibrium quantum system at low or high temperatures. At this Advanced Study Institute the different asp...
Use of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care. The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved. This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.
During August 1988. a group of 67 physicists from 45 laboratories in 17 countries met in Erice for the 26th Course of the International School of Subnuclear Physics. The countries represented were: Australia. Austria. Canada. China. Czechoslovakia. Denmark. France. Federal Republic of Germany. India. Italy. Poland. Portugal. Spain. Sweden. Switzerland. United Kingdom. and the United States of America. The School was sponsored by the European Physical Society (EPS). the Italian Ministry of Public Education (MPI). the Sicilian Regional Government (ERS). and the Weizmann Institute of Science. The interest in the Superworld is still very high. This is why. for the third year. the Erice School ha...
Going through a divorce is always tough, but when a child with special needs is involved it can be especially challenging. This book takes a clear and comprehensive look at every aspect of the legal divorce process, and addresses all of the legal issues that divorcing parents of children with special needs face. The author guides parents through the initial hurdles of choosing the right lawyer for their case, and explains exactly how to work with them to achieve the best possible outcome for all concerned. From agreeing upon child custody arrangements that meet the particular needs of the child, to making provision for child support payments, gathering together the documentation needed to prove a case, and dealing with financial issues such as debts and property distribution, no aspect of divorce is left uncovered. A set of checklists is included to ensure that parents consider everything they need to, and the book concludes with a useful list of further resources. Written by an experienced family lawyer who went through her own divorce when her son, who has autism, was six, this book offers much-needed guidance to divorcing parents of children with a variety of special needs.
As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.
Living with a chronic illness can have a significant psychological impact on a child and his or her family, and it is essential that this aspect of their care is not overlooked. This book provides a comprehensive guide to promoting the psychological well-being of children with chronic illnesses and medical conditions, covering support within health, social services and education. It discusses issues such as the impact of diagnosis and the experiences of children and their families in managing their medical condition and treatment. Strategies to support children and help them to cope with medical conditions are demonstrated, including cognitive behavioural and systemic approaches, and techniq...