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Les problèmes qui ont motivé la théorie et la pratique de la bioéthique dans les années 1960 et 1970 ont changé de nature. Les enjeux en bioéthique relèvent désormais de macro problèmes complexes, interreliés, qui touchent à la fois des populations entières et de nombreuses institutions sociales. L'auteure nous invite à une exploration méthodologique en bioéthique permettant de faire ressortir la complexité d'enjeux éthiques tels que l'euthanasie, le clonage et le commerce du gène et nous propose des moyens d'aborder cette complexité. Les écrits d'Edgar Morin sur la méthode et la complexité guident la réflexion.
"Human DNA: Law and Policy" provides the first international debate on a topic of universal concern. No book has brought together such a diverse range of multidisciplinary ethical and legal expertise on the highly controversial issues surrounding the use, storage, exchange and sale of the very stuff' of which we are made - human genetic material. Testing of human genetic material involves a variety of samples (pathological samples, newborn screening samples, samples leftover' after testing, and research samples), shared around the world. This places consent issues on an individual, familial, and societal level. The comparative and international perspectives presented reveal the transnational...
In Christian Ethics and Biomedical Innovation, Stephen Goundrey-Smith outlines a strategy for future adoption of human enhancement technologies which will ensure that such technologies are a common good, a strategy which is appropriate for a pluralistic society, yet consistent with Christian ethical principles. Drawing on the history of biomedical innovation to date in pharmaceutical medicine, he argues that technological capability alone is not enough, and that the responsible adoption of enhancement technologies will require active ethical deliberation and robust public policy discourse. Goundrey-Smith argues that biomedical technology, ethics, and public policy together form an essential triad for appropriate future enhancement technology adoption. This approach helps to ensure that biomedical technologies introduced will be common goods, and to reduce the risk of their instrumental use. The use of any technology is closely linked to its sociopolitical and cultural context and, drawing on Augustine’s The City of God, Goundrey-Smith presents a theological vision for good biomedical technology innovation in human society.
Vaccinate children against deadly pneumococcal disease, or pay for cardiac patients to undergo lifesaving surgery? Cover the costs of dialysis for kidney patients, or channel the money toward preventing the conditions that lead to renal failure in the first place? Policymakers dealing with the realities of limited health care budgets face tough decisions like these regularly. And for many individuals, their personal health care choices are equally stark: paying for medical treatment could push them into poverty. Many low- and middle-income countries now aspire to universal health coverage, where governments ensure that all people have access to the quality health services they need without r...
Representing the first collection on the topic, this book builds from foundations to case studies, to future prospects, providing the reader with a rich and comprehensive understanding of the use of multi-criteria decision analysis (MCDA) in healthcare. The first section of the collection presents the foundations of MCDA as it is applied to healthcare decisions, providing guidance on the ethical and theoretical underpinnings of MCDA and how to select MCDA methods appropriate to different decision settings. Section two comprises a collection of case studies spanning the decision continuum, including portfolio development, benefit–risk assessment, health technology assessment, priority setting, resource optimisation, clinical practice and shared decision making. Section three explores future directions in the application of MCDA to healthcare and identifies opportunities for further research to support these.
The newly adopted World Intellectual Property Organization (WIPO) Development Agenda presents a real opportunity to revolutionize the international governance of intellectual property law and policy. The litmus test for its success, however, will be if and how the agenda is implemented in practice. This edited collection brings together a series of incisive essays written by leading thinkers from emerging economies, Canada, and elsewhere to develop concrete strategies for implementing the agenda. The essays cover a range of fundamental issues surrounding the agenda and examine its recommendations from multidisciplinary and multi-regional perspectives. Several essays explore the role of WIPO ...
Original and interdisciplinary, this is the first book to explore the relationship between a neoliberal mode of governance and the so-called genetic revolution. Looking at the knowledge-power relations in the post-genomic era and addressing the pressing issues of genetic privacy and discrimination in the context of neoliberal governance, this book demonstrates and explains the mechanisms of mutual production between biotechnology and cultural, political, economic and legal frameworks. In the first part Antoinette Rouvroy explores the social, political and economic conditions and consequences of this new ‘perceptual regime’. In the second she pursues her analysis through a consideration o...
Quel est donc le statut, quelle est la «consistance» de ces discours envahissants qui traitent aujourd'hui d'éthique ou qui se réclament de l'éthique? Quel rôle ces discours jouent-ils dans la société?
Philosophical studies of public policy issues.