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Enhancing the Quality of Life of People with Intellectual Disabilities
This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.
Working Together, Learning Together
‘Working Together, Learning Together’ (WTLT) is the name of the nationwide inclusive research project in the Netherlands we conducted from 2016 tot 2020. Within this research project, the PhD research work of Sofie Sergeant involved an inclusive and action-orientated reflective practice of developing training for other inclusive research teams. The PhD manuscript is built up upon a collection of five papers. Two research questions are guiding: What are the catalysing ingredients and conditions for organising inclusive research in order to overcome attitudinal barriers, barriers in the social process, material barriers and within-person barriers? Based upon these ingredients and condition...
Including Voices
Through the presentation of research and an examination of exclusionary conditions, and the ways in which these are being challenged, the editors and authors present an important debate focused upon human rights and practical application of inclusive practices.
Mental Health, Intellectual and Developmental Disabilities and the Ageing Process
This book brings together findings from research and clinical practice, with comprehensive coverage of the important aspects of mental health in ageing persons with intellectual and developmental disabilities. It is crucial for professionals involved in the care of persons with all intellectual and developmental disabilities to have a broad understanding of the essential range of issues, and therefore this book provides a truly multi-disciplinary perspective, complete with many figures and illustrations to underline the key points. Undoubtedly, research and clinical practice are much more advanced in the general ageing population than in persons with intellectual and developmental disabiliti...
Creating Human Nature
Human genetic enhancement, examined from the standpoint of the new field of political bioethics, displaces the age-old question of truth: What is human nature? This book displaces that question with another: What kind of human nature should humans want to create for themselves? To answer that question, this book answers two others: What constraints should limit the applications of rapidly developing biotechnologies? What could possibly form the basis for corresponding public policy in a democratic society? Benjamin Gregg focuses on the distinctly political dimensions of human nature, where politics refers to competition among competing values on which to base public policy, legislation, and political culture. This book offers citizens of democratic communities a broad perspective on how they together might best approach urgent questions of how to deal with the socially and morally challenging potential for human genetic engineering.
Disability and Political Representation
Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people. Evans and Reher identify a variety of ableist barriers prevent disabled people from fully participating in the political process, from disenfranchisement and inaccessible polling stations to prejudice within parties and a lack of financial support for candida...
Disability Studies in de Lage Landen
‘Disability’ gaat in oorsprong terug naar een fenomeen dat ontstaat wanneer iemand met een beperking/stoornis/label op een negatieve manier geconfronteerd wordt met gebouwde, fysieke, sociale, georganiseerde en culturele omgevingen. Dergelijke op zijn minst onaangename confrontaties ontstaan omdat een groot deel van de huidige samenleving gespiegeld wordt aan wat een ‘normaal’ persoon wordt genoemd. Disabilty studies scholars zijn lange tijd blijven hangen in een modellenstrijd. De laatste tijd wordt echter een heel andere discussie gevoerd. Het gaat immers om een complex en relationeel probleem met vele armen. Precies dit geheel wordt in dit boek vanuit diverse invalshoeken geanalyseerd.
Emotionele ontwikkeling bij personen met een verstandelijke beperking en geestelijke gezondheidsproblemen
Dit boek geeft de state of the art weer met betrekking tot de ondersteuning van personen met een verstandelijke beperking en geestelijke gezondheidsproblemen. Het richt zich tot de omgeving van kwetsbare personen met een beperking: begeleiders, leerkrachten, familieleden, teamcoaches, management en beleid. Het roept hen op kritische wijze op om zich, met behulp van coaching, af te stemmen op – of aan te passen aan – de emotionele noden (dus niet enkel aan het gedrag) van deze kwetsbare personen. Op die manier kan hun geestelijke gezondheid en kwaliteit van leven versterkt worden. Aan de basis van dit boek ligt het doctoraatsonderzoek van Filip Morisse. Een aantal voor de auteur ‘Belangrijke Anderen’ – een centraal begrip van gehechtheid in de emotionele ontwikkeling – schreven een beschouwing. Een afsluitend hoofdstuk suggereert enkele belangrijke thema’s voor toekomstig onderzoek, theorievorming, klinische praktijk en beleid.
