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All Rise
Roger Chennells is a human rights lawyer and conflict resolver by trade. In ALL RISE, he shares encounters with a host of quirky characters balanced on the scales of justice. His captivating stories include rites of passage in Zululand, student pranks, forays into the law courts, legal work for the Pitjantjatjara in Australia, the San and Rastafarians, paranormal encounters, and service to clients ‛in low places'. He has a fine ear for mimicry and the dramatic moment. These Multifaceted tales are sprinkled with irony and paradox, conveyed through a sometimes off-beat sense of humour. And like all good storytellers, he leaves us wanting more. A collection of stories from the life and career of a human rights lawyer, with the focus more on the human condition, and with the law as the backdrop.
WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing
The report of the third meeting of the WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing summarizes the meeting that was held on 25–26 February 2020, in Cape Town, South Africa. It provides a summary of the past activities of the Committee, the discussions and outcomes of the meeting.
Social Science Research Ethics in Africa
This book gives a voice to debates surrounding social science research ethics in Africa and brings them together in a coherent form to assist readers in being at the forefront of the discussions. The book gives an overview of the importance of research ethics in social sciences, as well as articulating the African influence on the subject matter. Subsequently it looks into specific frameworks and tools that researchers can apply in the process of doing research. Last but not least it also takes an in-depth look at traditional ethical issues pertaining to research in social sciences, through the lens of the African continent. This is the first book on social science research ethics in an African context and an indispensable resource for researchers, students, policy makers and research institutions in or interested in African research ethics.
Indigenous Peoples, Consent and Benefit Sharing
Indigenous Peoples, Consent and Benefit Sharing is the first in-depth account of the Hoodia bioprospecting case and use of San traditional knowledge, placing it in the global context of indigenous peoples’ rights, consent and benefit-sharing. It is unique as the first interdisciplinary analysis of consent and benefit sharing in which philosophers apply their minds to questions of justice in the Convention on Biological Diversity (CBD), lawyers interrogate the use of intellectual property rights to protect traditional knowledge, environmental scientists analyse implications for national policies, anthropologists grapple with the commodification of knowledge and, uniquely, case experts from Asia, Australia and North America bring their collective expertise and experiences to bear on the San-Hoodia case.
Benefit Sharing
Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.
Equitable Research Partnerships
This open access book offers insights into the development of the ground-breaking Global Code of Conduct for Research in Resource-Poor Settings (GCC) and the San Code of Research Ethics. Using a new, intuitive moral framework predicated on fairness, respect, care and honesty, both codes target ethics dumping – the export of unethical research practices from a high-income setting to a lower- or middle-income setting. The book is a rich resource of information and argument for any research stakeholder who opposes double standards in research. It will be indispensable for applicants to European Union framework programmes, as the GCC is now a mandatory reference document for EU funding.
Equitable Access to Human Biological Resources in Developing Countries
The main question explored by the book is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed in such a way as to achieve equity for vulnerable populations in developing countries? The book situates the field of genomic and genetic research within global health and research frameworks, describing the concerns that have been raised about the potential unfairness in exchanges during recent decades. Access to and sharing in the benefits of human biological resources are aspects not regulated by any international legal framework such as the Convention on Biological Diversity, which applies only to the exchange of plants, animals and microorganisms, ...
Reinventing Hoodia
Native to the Kalahari Desert, Hoodia gordonii is a succulent plant known by generations of Indigenous San peoples to have a variety of uses: to reduce hunger, increase energy, and ease breastfeeding. In the global North, it is known as a natural appetite suppressant, a former star of the booming diet industry. In Reinventing Hoodia, Laura Foster explores how the plant was reinvented through patent ownership, pharmaceutical research, the self-determination efforts of Indigenous San peoples, contractual benefit sharing, commercial development as an herbal supplement, and bioprospecting legislation. Using a feminist decolonial technoscience approach, Foster argues that although patent law is i...
