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CHIMBRIDS - Chimeras and Hybrids in Comparative European and International Research
National, European and international concepts and strategies concerning the legal and ethical framework of chimera and hybrid research are still largely missing, even though they are absolutely necessary in order to use the potential of chimera and hybrid research effectively and efficiently for the benefit of science and society. The outcome of the CHIMBRIDS-Project successfully sheds light on the chances and risks of this research and provides legal solutions to existing problems in order to help decision-makers fulfil their tasks in an informed and efficient manner. This comprehensive volume details the complete results, contributed by 40 scholars from 10 member states of the European Union, Canada, China, Israel, Japan, Switzerland and the US, with descriptive reports of the legal situation in specific countries and in-depth analysis of all scientific, medical, ethical and legal implications of chimera and hybrid research.
The Right to Health at the Public/Private Divide
A comparative study covering all continents, this book explores the role of health rights in advancing greater equality through access to health care.
Women and Modern Medicine
Modernising scientific medicine emerged in the nineteenth century as an increasingly powerful agent of change in a context of complex social developments. Women's lives and expectations in particular underwent a transformation in the years after 1870 as education, employment opportunities and political involvement extended their personal and gender horizons. For women, medicine came to offer not just treatment in the event of illness but the possibilities of participation in medical practise, of shaping social policies and political understandings, and of altering the biological imperatives of their bodies. The essays in this collection explore various ways in which women responded to these challenges and opportunities and sought to use the power of modernising Western medicine to further their individual and gender interests.
Influencing Traits Before Birth
This title was first published in 2002.In this informative and captivating book the author presents a moral critique of the laws governing the creation of designer babies. Alan Gewirth’s Principle of Generic Consistency is used as the starting point for developing a framework, which is then used to critique the legal position in the EU countries (with particular reference to the UK), Canada and the USA. The conclusion the author reaches is that a proper moral response to the issues covered must take account of specified prima facie presumptions, to be applied by legitimately appointed regulatory bodies. The text assesses the adequacy of existing regulatory responses by reference to these presumptions. Also containing detailed appendices summarizing the legal position with regard to abortion and prenatal diagnosis, preimplantation genetic diagnosis, in vitro embryo research, cloning, and germ-line gene therapy in the countries mentioned above, this volume is an indispensable resource for both students and scholars with a keen interest in this highly contested field.
Implementation of the Data Protection Directive in Relation to Medical Research in Europe
The Data Protection and Medical Research in Europe: PRIVIREAL series focuses on the 'Privacy in Research Ethics and Law' EC-funded project examining the implementation of Directive 95/46/EC on data protection in relation to medical research and the role of ethics committees in European countries. The series consists of five separate volumes following the complete development of the PRIVIREAL project. This volume relates to the first stage of this project concerning the implementation of the Data Protection Directive, in particular in the area of medical research. It contains reports from 26 European countries on the implementation of the Directive, or the data protection regime, all with a specific focus on issues and questions relating to medical research. Presenting a unique resource for all those involved in data protection, medical research and their implications for each other, this title provides a valuable insight into the actual workings across Europe, including both the New Member States and the Newly Associated Member States.
Doing Multidisciplinary Research on Religion
Religion is increasingly visible in the contemporary world as a complex phenomenon – requiring multidisciplinary research to do justice to the complexity. Multidisciplinary research is however, though lauded by many, notoriously difficult to bring to fruition. This volume takes on the challenge to bridge the gap. Contributions formulate the challenges many have faced, but few yet analysed and put into the hands of researchers concrete tools with which to set about designing and executing multidisciplinary research on religions, beliefs and religious behaviour. In an era where research funding increasingly expects interdisciplinary collaboration it provides guidance on constructive pathways and pitfalls to avoid. Contributors are: Riho Altnurme, Anders Bäckström, Lori G. Beaman, Karin Borevi, Leon van den Broeke, Valerie DeMarinis, Victoria Enkvist, Jonny Långstedt, Annette Leis-Peters, Anna-Sara Lind, Martha Middlemiss Lé Mon, Cecilia Nahnfeldt, Per-Erik Nilsson, Peter Nynäs, Margit Warburg, and Anne-Laure Zwilling.
Preference and Information
Is it important to our quality of life that the preferences we satisfy are rational and well-informed? Standard preferentialist theories allege that a person's preferences and their satisfaction are the correct measure of well-being. In preference-sensitive theories, preferences are important but do not count for everything. This raises the question of whether we ought to make demands on these preferences. In this book Egonsson presents a critical analysis of the 'Full Information Account of the Good', which claims that only the satisfaction of rational and fully informed preferences has value for a person. The problems he deals with include: how is an information requirement to be formulated and shaped? Is it possible to design a requirement that is both neutral to the agent's epistemic situation and reasonable? Is the requirement reasonable? Does it make sense to claim that some are better off if we satisfy the preferences they would have had in some merely hypothetical circumstances? This is an important new book on preference rationality which will be of great interest to academics and students of ethics, quality of life, and rationality.
Juridification In Bioethics: Governance Of Human Pluripotent Cell Research
What is 'legal' about bioethics? What are the ideas and artefacts that bioethics encompasses, and how are they related to law? What is the role of law in bioethics? In this work, Calvin Ho attempts to address these questions in the context of the governance of human pluripotent stem cell research. In essence, he argues that the hybridization of law, through processes, devices and techniques of juridification, has helped to constitute bioethics as a public sphere and an emergent civic epistemology.Drawing on his multi-sited ethnographic fieldwork and on Actor-Network-Theory, Ho explains how the law has, through bioethics, contributed to the scientific and public understanding of human pluripo...
