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The Patient's Wish to Die
It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care.
On Crime, Society, and Responsibility in the Work of Nicola Lacey
Few contemporary scholars have done more in their work to develop the idea of responsibility than Nicola Lacey. She ranks alongside thinkers and writers such as HLA Hart and Antony Honoré in developing approaches to understanding responsibility. Like these authors, the influence of her work has spread beyond academia to change the perception of responsibility amongst practitioners. Both Hart and Honoré have during their lifetime had volumes dedicated to their work. This book does the same for Nicola Lacey, marking her ongoing influence and accomplishments in the common law world through a collection of essays by leading international scholars reflecting and interrogating her contribution t...
Contemporary European Perspectives on the Ethics of End of Life Care
This book examines the ethics of end of life care, focusing on the kinds of decisions that are commonly made in clinical practice. Specific attention is paid to the intensification of treatment for terminal symptoms, particularly pain relief, and the withdrawal and withholding of care, particularly life-saving or life-prolonging medical care. The book is structured into three sections. The first section contains essays examining end of life care from the perspective of moral theory and theology. The second sets out various conceptual terms and distinctions relevant to decision-making at the end of life. The third section contains chapters that focus on substantive ethical issues. This format not only provides for a comprehensive analysis of the ethical issues that arise in the context of end of life care but allows readers to effectively trace the philosophical, theological and conceptual underpinnings that inform their specific interests. This work will be of interest to scholars working in the area as well as clinicians, specialists and healthcare professionals who encounter these issues in the course of their practice.
Personalized Medicine
"Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society"--Provided by publisher.
Assisted Suicide and the European Convention on Human Rights
Locating assisted suicide within the broader medical end-of-life context and drawing on the empirical data available from the increasing number of permissive jurisdictions, this book provides a novel examination of the human rights implications of the prohibition on assisted suicide in England and Wales and beyond. Assisted suicide is a contentious topic and one which has been the subject of judicial and academic debate internationally. The central objective of the book is to approach the question of the ban’s compatibility with the European Convention on Human Rights afresh; freed from the constraints of the existing case law and its erroneous approach to the legal issues and selective re...
Narrating Illness: Prospects and Constraints
This volume was first published by Inter-Disciplinary Press in 2016. Telling the story of illness emerges from a landscape of pain, grief and loss, but its therapeutic value is indubitable. This volume grapples with the potentials and limitations of such narratives as diverse cultural perceptions and realities are granted the voice to probe into those stories from literary and textual material, as well as empirical, ethnographic, historical, and personal bases. Some of the chapters draw upon the capacity of storytelling to heal bodies and souls, whereas others provide an important corrective to this overwhelmingly optimistic portrayal by focusing on the limits of storytelling and narrative to address physical and psychic trauma. Despite the different approaches, what ties these chapters together is a more focused textual and contextual analysis of the intersection between forms of storytelling and sharing the experience of illness as studied and witnessed and sometimes even lived by the authors of the volume.
Assistierter Suizid für psychisch Erkrankte
Selbsttötungsgedanken sind häufige Begleitphänomene schwerer, unheilbarer körperlicher und psychischer Erkrankungen. Die Mehrheit der Suizide wird von Menschen mit psychischen Erkrankungen vollzogen. Während es bei unheilbaren körperlichen Erkrankungen heute einen breiten Zuspruch gibt, wenn das Prinzip "Leidverminderung durch Lebensverkürzung" in Form des künstlich herbeigeführten Todes zur Anwendung kommt, ist dies bei psychischen Erkrankungen umstritten. Der Wunsch nach assisitertem Suizid von psychisch Erkrankten scheint schwerer greifbar. Er kann Ausdruck einer akuten psychischen Leidensphase sein, die jedoch medikamentös überwindbar ist. Er kann aber auch Ausdruck eines Wuns...
Voices of Illness: Negotiating Meaning and Identity
This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.
Reden wir über das Sterben
Als Kathryn Schneider-Gurewitsch zum dritten Mal an Krebs erkrankt, weiss sie, dass er diesmal unheilbar ist. Es wird ihr klar, dass sie nicht mehr lange zu leben hat. Wie viele Menschen wünscht sie sich einen guten Tod. Aber was heisst das konkret, wenn es dem Ende zugeht? Sie beginnt ihre Erfahrungen als Ärztin, die jetzt eine Patientin ist, niederzuschreiben. Als Fachfrau, die beide Seiten kennt, geht sie den wichtigen Fragen am Lebensende nach: Was wünschen sich Sterbende, und was erleben sie in Realität? Wie sterben Ärztinnen und Ärzte selbst? Was verhindert, dass sich Arzt und Patient am Lebensende verstehen? Sie erörtert sinnlose und nutzlose Therapien, das Machbare und das Bezahlbare, die Patientenverfügung, den assistierten Suizid, die Nöte der Patienten wie der Ärzte. Und sie beschreibt, was Menschen auf dem Weg in den Tod hilft. "Reden wir über das Sterben" hat einen Informationswert und eine Authentizität, die seinesgleichen suchen, und das Buch macht Mut, sich mit diesen letzten Fragen auseinanderzusetzen. "Dieses Buch ist von grosser Aktualität und Eindrücklichkeit. Ich bin tief berührt und habe sehr viel daraus gelernt." Prof. Dr. Udo Rauchfleisch
Angst, Verlust, Trauer und die Frage nach dem Sinn
Eine Krebsdiagnose wirft die meisten Menschen aus der Bahn und bedeutet einen tiefen und bedrohlichen Einschnitt in ihr eigenes Leben, aber auch dasjenige ihrer Angehörigen. Die Erkenntnis, dass das Leben endlich und prekär ist, kann existenzielle Ängste, tiefe Trauer und Fragen nach dem Sinn auslösen, geht es ja letztlich um die Fragen nach Sterben und Tod. Wie können involvierte Fachpersonen mit diesen letzten Fragen der „conditio humana“ umgehen, wie können sie, trotz eigener Betroffenheit, angesichts dieser existenziellen Herausforderungen tragend und hilfreich sein? Diesen Fragen geht die vorliegende Publikation mit theoretischen Inputs sowie praktischen Vorschlägen für den Aufbau einer existenziellen Grundhaltung erfolgreich nach. Die Autorin Barbara Leu ist Psychotherapeutin (systemisch und existenzielle Ausrichtung) und Psychoonkologin am Kantonsspital Aarau, Schweiz. Daneben arbeitet sie als Psychotherapeutin in einer psychiatrisch/psychologischen Gemeinschaftspraxis in Zürich, Schweiz.
