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Staying in Charge
Practical, emotional, and spiritual guidance The time may come when you or a loved one has to face a life-threatening illness; when you realize that you or your loved one may be dying. It's never easy to think about the last years of life, but being prepared can help you have your hopes and wishes realized. By taking the time now to plan for the future, you can maintain control of your life even at the very end. Staying in Charge is a supportive guide to opening up the lines of communication and making life more fulfilling from the first day of diagnosis of a serious illness. This reassuring handbook helps you to focus on important matters such as: * Handling a living will or a do-not-resusc...
Transforming the Culture of Dying
Transforming the Culture of Dying assesses the establishment of the Project on Death in America and evaluates its the contributions to the development of the palliative care field and end of life care in American society.
Patient Safety and Quality in Pediatric Hematology/Oncology and Stem Cell Transplantation
This volume provides a concise yet comprehensive overview of patient safety issues and quality improvement for the pediatric hematology/oncology/stem cell transplant practice. The book reviews patient safety in complex healthcare delivery systems, delineates the various safety issues affecting pediatric hematology/oncology patients, and discusses quality improvement methods and improvement science that allow the reader to implement and sustain change in their home institution. The text also explores mechanisms to measure quality and safety outcomes, allowing the provider to implement proven processes shown to minimize harm to patients. Written by experts in the field, Patient Safety and Quality in Pediatric Hematology/Oncology and Stem Cell Transplantation is a valuable resource for healthcare professionals treating pediatric hematology, oncology and stem cell transplant patients.
When Children Die
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
Miracles We Have Seen
This is a book of miracles—medical events witnessed by leading physicians for which there is no reasonable medical explanation, or, if there is, the explanation itself is extraordinary. These dramatic first-person essays detail spectacular serendipities, impossible cures, breathtaking resuscitations, extraordinary awakenings, and recovery from unimaginable disasters. Still other essays give voice to cases in which the physical aspects were less dramatic than the emotional aspects, yet miraculous and transformational for everyone involved. Positive impacts left in the wake of even the gravest of tragedies, profound triumphs of heart and spirit. Preeminent physicians in many specialties, inc...
Essentials of Ophthalmic Oncology
The first edition of this text offers guidance and advice on the diagnosis and management of the complete spectrum of ophthalmic tumors, including the eyelid, conjunctival, intraocular, and orbital tumors. The editors are joined by over 120 international contributors to present a broad perspective from a multidisciplinary team that will offer a diverse and balanced view of ophthalmic oncology clinical practice. This is a comprehensive book that includes over 100 chapters, organized into 7 sections that provide a wealth of information for the management of patients with ophthalmic tumors from examination techniques to classification to surgical techniques.
Shelter From The Storm
Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.
Improving Palliative Care for Cancer
In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.
Living Time
Living Time is at once a personal odyssey, an intimate doctor-patient communication, and a prescriptive guide for patients and their families. Writing with wit and humility, Dr. Bernadine Healy shares the hard-won insights that transformed her own struggle with a deadly cancer more than seven years ago, affirming her identity as patient and doctor with the many who share this journey. Together with more than ten million survivors in the United States alone, Dr. Healy, former director of the National Institutes of Health, is a close witness to the medical advances that have brought us to a turning point in the war on cancer. This quiet revolution is curing a growing number of cancers and tran...
Cancer Care for the Whole Patient
Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not p...
