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This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.
"I wish I had not had to write this book because then my lovely son Reuben would still be alive," says David Cohen. "He was adorable, formidably intelligent, a loving son, a loving brother. He died far too young. He had the bad luck to have two grandparents who had addictive personalities. His efforts to resist the lure of drugs failed. And so did I." The Book of My Son Reuben is a personal account of how psychologist David Cohen coped – and did not cope – with the death of his son, Reuben. Offering a unique perspective on the experience of parental loss, it offers a personal and analytical exploration of sorrow and guilt, and of what research tells us about trauma and grief. Illustrated...
This two-volume book offers extensive interviews with persons who have made significant contributions to thanatology, the study of dying, death, loss, and grief. The book’s in-depth conversations provide compelling life stories of interest to clinicians, researchers, and educated lay persons, and to specialists interested in oral history as a means of gaining rich understandings of persons’ lives. Several disciplines that contribute to thanatology are represented in this book, such as psychology, religious studies, art, literature, history, social work, nursing, theology, education, psychiatry, sociology, philosophy, and anthropology. The book is unique; no other text offers such a compr...
Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.
This book responds to a growing interest in death, dying and the dead within and beyond the field of death studies. The collection defines an understanding of ‘difficult death’ and examines the differences between death, dying and the dead, as well as exploring the ethical challenges of researching death in mediated form. The collection is attendant to the ways in which difficult deaths are imbricated in power structures both before and after they become mediatised in culture. As such, the work navigates the many political and social complexities and inequalities – what might be deemed the difficulties – of death, dying and the dead. The book seeks to expand understandings of the difficulty of death in media and culture through a wide range of chapters from different contexts focused on literature, film, television, and in online environments, as well as several chapters examining news reportage of difficult deaths.
A practical, compassionate guide to sibling loss, with research, stories, and strategies for “forgotten mourners” as they move through the stages of grief towards finding meaning. After her brother was killed by a suicide bomber in Afghanistan, Annie Sklaver Orenstein was heartbroken and unmoored. Standing in the grief section of her local bookstore, she searched for guides on how to work through her grief as a mourning sibling—and found nothing. More than 4 million American adults each year will lose a sibling, yet there isn't a modern resource guide available that speaks directly to this type of grief that at times can be overshadowed by grieving parents and spouses and made even mor...