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Human DNA
"Human DNA: Law and Policy" provides the first international debate on a topic of universal concern. No book has brought together such a diverse range of multidisciplinary ethical and legal expertise on the highly controversial issues surrounding the use, storage, exchange and sale of the very stuff' of which we are made - human genetic material. Testing of human genetic material involves a variety of samples (pathological samples, newborn screening samples, samples leftover' after testing, and research samples), shared around the world. This places consent issues on an individual, familial, and societal level. The comparative and international perspectives presented reveal the transnational...
The Stored Tissue Issue
This book provides a thorough, well-balanced analysis of common research practices with banked tissues, DNA, and genetic data. Describing many examples of beneficial tissue research, the authors focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. They offer a series of recommendations to help overcome these problems.
History Within
History Within explores how the life sciences have contributed to public and popular history and to moral and political visions for a just society of the future. It shows how the sciences that deal with the evolutionary history of human groups and of humankind are powerful producers of origin narratives and experiences of kinship and belonging. Marianne Sommer looks at the collecting efforts of three key scientistsHenry Fairfield Osborn, Julian Huxley, and Luca-Luigi Cavalli-Sforzathat render the interactive creation of bio-historical knowledge possible in the first place and asks how their scientific data was translated into more broadly meaningful narratives, images, and exhibits. The bones, organisms, and molecules they studied acquire political value, she argues, in negotiations over issues of interpretation and how scientific results ought to be communicated to the public. History Within is an essential history of biology in the twentieth and twenty-first centuries."
Biotechnology and the Consumer
Biotechnology is a rapidly developing sector of the economy for coun tries throughout the world. This rapid development has led to heated debate over its risks and benefits. Advocates of biotechnology point to the potential benefits offered by products that promise to elimi nate disease, provide for more efficient diagnostic techniques, treatments and drugs, yield increased food production, and so forth. Others fear that the rapid developments of this technology have occurred without appropriate consideration having been given to the ethical ramifications, the potential health risks and long-term envi ronmental impacts, implications for income distribution, and potential for abuse. Consumers...
Patent Law in Global Perspective
Patent Law in Global Perspective addresses critical and timely questions in patent law from a truly global perspective, with contributions from leading patent law scholars from various countries and various disciplines. The rich scholarship featured reflects on a wide range of perspectives, offering insights and new approaches to evaluating key institutional, economic, doctrinal, and practical issues that are at the forefront of efforts to reform the global patent system, and to reconfigure geo-political interests in on-going multilateral, trilateral, and bilateral initiatives.
The Seduction of Ethics
Formal research-ethics committees in Canada now function as an industry, costing over thirty-five million dollars annually. The Seduction of Ethics argues that while ethics codes are alluring to the public, they fuel moral panic and increase demands for institutional accountability. Will C. van den Hoonaard explores the research-ethics review process itself by analysing the moral cosmology and practices of ethics committees regarding research and researchers. The Seduction of Ethics also investigates how researchers have tailored their approaches in response to technical demands leading social science disciplines to resemble each other more closely and lose the richness of their research. Van den Hoonaard reveals an idiosyncratic and inconsistent world in which researchers employ particular strategies of avoidance or partial or full compliance as they seek approval from ethics committees.
