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Human DNA
"Human DNA: Law and Policy" provides the first international debate on a topic of universal concern. No book has brought together such a diverse range of multidisciplinary ethical and legal expertise on the highly controversial issues surrounding the use, storage, exchange and sale of the very stuff' of which we are made - human genetic material. Testing of human genetic material involves a variety of samples (pathological samples, newborn screening samples, samples leftover' after testing, and research samples), shared around the world. This places consent issues on an individual, familial, and societal level. The comparative and international perspectives presented reveal the transnational...
The Commercialization of Genetic Research
The rapid advances made in genetic research and technology over the last few decades have led to a host of important discoveries that have allowed for the detection (and hopefully soon the treatment) of a number of genetic conditions and diseases. Not surprisingly, these advances have also raised numerous ethical concerns about how result ing technologies will be implemented, and the impact they will have on different com munities. One particular concern is the enormous costs involved in conducting genetic research and the fact that the private sector has become heavily involved; the desire to commercialize the results and technology derived from genetic research is considered problematic. I...
The Stored Tissue Issue
Genetics research with stored human tissues provides many benefits and holds much promise. Yet how this critical research is conducted sometimes raises serious ethical, legal, and social concerns, and it is difficult to balance the promise of biomedical research with our time-honored commitments to individual choice in such fundamental matters as control over personal health information and the disposition of our bodily tissues. Weir and Olick provide a thorough analysis of this critical phase in the era of genomic medicine. While strongly supportive of the biomedical research enterprise, they develop a critique of many common research practices with banked tissues, DNA, and genetic data. No...
DNA and the Criminal Justice System
Examines the impact of DNA technology on issues of ethics, civil liberties, privacy, and security.
Wilhelm Wentzell Family of Nova Scotia and Beyond, 1705-2003
Wilhelm Wentzell was born in 1705 in Darmstadt, Hessen, Germany. He married Anna Maria Conradt. They had six children. They emigrated in 1751 and settled in Nova Scotia. Descendants and relatives lived mainly in Nova Scotia and Massachusetts.
Promoting the “Human” in Law, Policy, and Medicine
Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong intellectual legacy, notably through her work on the human right to science, genomic and health-related data sharing, genome editing, human reproductive technologies, stem cell research, the rights of children, and population health. This collection of essays honours her extraordinary academic contributions to law, policy, and medicine.
Seduction of Ethics
Formal research-ethics committees in Canada now function as an industry, costing over thirty-five million dollars annually. The Seduction of Ethics argues that while ethics codes are alluring to the public, they fuel moral panic and increase demands for institutional accountability. Will C. van den Hoonaard explores the research-ethics review process itself by analysing the moral cosmology and practices of ethics committees regarding research and researchers. The Seduction of Ethics also investigates how researchers have tailored their approaches in response to technical demands — leading social science disciplines to resemble each other more closely and lose the richness of their research. Van den Hoonaard reveals an idiosyncratic and inconsistent world in which researchers employ particular strategies of avoidance or partial or full compliance as they seek approval from ethics committees.
Is Our House in Order?
Does Canada abide by its international agreements?
Crafting a Cloning Policy
Ever since Dolly, the Scottish lamb, tottered on wobbly legs into our consciousness-followed swiftly by other animals: first, mice; then pigs that may provide human transplants, and even an ordinary house cat-thoughts have flown to the cloning of human beings. Legislators rushed to propose a ban on a technique that remains highly hypothetical, although some independent researchers have announced their determination to pursue the possibilities. Political scientist and well-known expert on reproductive issues, Andrea L. Bonnicksen examines the political reaction to this new-born science and the efforts to construct cloning policy. She also looks at issues that relate to stem cell research, its...
Biotechnology and the Consumer
Biotechnology is a rapidly developing sector of the economy for coun tries throughout the world. This rapid development has led to heated debate over its risks and benefits. Advocates of biotechnology point to the potential benefits offered by products that promise to elimi nate disease, provide for more efficient diagnostic techniques, treatments and drugs, yield increased food production, and so forth. Others fear that the rapid developments of this technology have occurred without appropriate consideration having been given to the ethical ramifications, the potential health risks and long-term envi ronmental impacts, implications for income distribution, and potential for abuse. Consumers...
