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This book describes an emotional territory, which forms the individual's own sphere of action and experience. This develops in the course of evolution in pace with the individual's conditions of life, brought about by challenges in the natural and social environment.
"Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this...
It is possible to assert that we have now fully entered the era of artificial intelligence (AI), given the current state of technology and society. Whether or not we are aware of its presence, a growing proportion of the activities that comprise our day-to-day lives include the application of technology that makes use of artificial intelligence. AI can be found in our "smart" phones and TVs, personalized recommendations for products in online shops or other businesses use AI techniques, natural language processing can be used for automatic translation, voice recognition, and generation, and the intelligent assistants of Google, Amazon, Apple, and Microsoft (such as Alexa, Siri, and Cortana) ...
Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in t...
Using sources from classical to modern that broach the phenomenon of uncertainty and its relation to risk, this book creates a novel approach to the recognized but theoretically often unattended issue of uncertainty. Andreas Klinke develops a new, general theory of uncertainty that provides a taxonomy of categories which are deduced from a critical inventory in philosophy, social and natural sciences, and risk research. Comprising six parts, the philosophical grounding of uncertainty sets the stage for the following philosophical and social scientific accounts and explanation of four distinctive guises of uncertainty that form a taxonomic notion and rationale: ontological, epistemological, l...
It is possible for an act to wrongfully harm a person, even if that person is dead. David Boonin explains the puzzle of posthumous harm and examines its ethical implications for such issues as posthumous organ removal, posthumous publication of private documents, damage to graves, and posthumous punishment.
Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research -- A Pan-European analysis of Article 89 implementation and national biobank research regulations -- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations -- Part III National insights in biobank regulatory frameworks -- Selected 10-15 countries for reports: Germany -- Greece -- France -- Finland -- Sweden -- United Kingdom -- Part IV Conclusions -- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward. .
First multi-year cumulation covers six years: 1965-70.
This book advances the study and practice of ethics management through seminal analyses of the who/how/why/when/and where of corruption. In accessible and direct language, thirty foremost scholars and experts from across the globe translate robust theory into actionable programs and policies. Global Corruption and Ethics Management: Translating Theory into Action is focused on integrating research from a diverse array of scholars and translating it into proactive skills; the empirical content is presented clusters of short chapters, each cluster or section is followed by a synopsis of skills for implementation based upon this new knowledge. The scope of the content encompasses the work of to...
This new, thoroughly recast Second Edition has been acclaimed as "the most important book written since the beginning of that strange project called bioethics" (Stanley Hauerwas, Duke University). Its philosophical exploration of the foundations of secular bioethics has been substantially expanded. The book challenges the values of much of contemporary bioethics and health care policy by confronting their failure to secure the moral norms they seek to apply. The nature of health and disease, the definition of death, the morality of abortion, infanticide, euthanasia, physician-assisted suicide, germline genetic engineering, triage decisions and distributive justice in health care are all addressed within an integrated reconsideration of bioethics as a whole. New material has been added regarding social justice, health care reform and environmental ethics. The very possibility and meaning of a secular bioethics are re-explored.