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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. This guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information.
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The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
Discrimination impacts most youth at some point. Almost all children and adolescents belong to at least one stigmatized group, whether they are a Black or Latino boy in school; an immigrant or refugee; a gay, lesbian, or bisexual teen; or a girl in physics class. Discrimination on the basis of race/ethnicity, immigration status, gender, sexual orientation, and gender identity can have long-term academic, psychological, and social repercussions, especially when it is directed at a cognitively developing child or an emotionally vulnerable adolescent. How children and adolescents are impacted by this discrimination depends on their cognitive ability to perceive the bias, the context in which th...