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Children’s Palliative Care: An International Case-Based Manual
This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-b...
Functional Perspectives on Grammar and Discourse
This book, a tribute to Angela Downing, consists of twenty papers taking a broadly functional perspective on language, with topics ranging from the general (grammar as an evolutionary product, text comprehension, integrative linguistics) to particular aspects of the grammars of languages (Bulgarian, English, Icelandic, Spanish, Swedish). The more specific papers are sequenced according to Halliday s division into ideational, textual and interpersonal aspects of the grammar, and cover a wide range of areas, including aspect, argument structure, noun phrase/nominal group structure and nominalisations, pronominal clitics, theme in relation to writing skills, discourse structures and markers, the role of attention in conversation, the functions of topic, phatic communion, subjectification, formulaic language and modality. A recurrent theme in the volume is the use of corpus materials in order to base functional descriptions on authentic productions. Overall, the volume constitutes a panoramic but nevertheless detailed view of some important current trends in functional linguistics.
Understanding the Grief and Loss Experiences of Carers
This book draws on recent research and cutting-edge ideas about bereavement and carers’ experiences across the life course to explore carers’ experience of loss and discuss their specific needs prior and or following the death of those they care for. Whether care provided is related to a long term or life limiting condition, many carers experience a multitude of losses including indefinite loss characterised by the loss of a taken-for-granted future, and an inability to plan for the future. Carers may also experience anticipatory grief as multiple losses such as companionship, personal freedom, and control manifest. While many carers are dedicated and committed to their role, they are su...
Letters
Two letters by Edward O'Sullivan: 6 July 1857, to Mr. John Downing, Kerry, Ireland, written from Sandy Creek diggings (Victoria). 10 September 1872 to Lucy Downing (O'Sullivan's sister) from the Colony of Victoria. Also includes 3 photographs (Downing family, Edward O'Sullivan, Lucy Downing) and a letter by Julia Downing to her uncle John Flynn (father of donor).
Pediatric Palliative Care
This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Palliative Care for Chronic Cancer Patients in the Community
The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specifi...
CureAll framework
This framework document is a “how-to” guide for policy-makers and programme managers to effectively implement the CureAll pillars and enablers. It provides justification for action, posits priority interventions and proposes a monitoring framework. Key components needed to establish, scale up and sustain a well-functioning national childhood cancer programme are explained.The scope of this framework document is centrally defined by the programmes, services and policies that support children with cancer in the context of the health system. For the Initiative, children are defined as those aged 19 years or younger. Childhood cancer care requires cross-cutting strategies, such as workforce ...
The Chapel of Princeton University
"This edition contains Stillwell's original text without revisions"--Foreword.
Palliative Care Nursing: Principles and Evidence for Practice
What can nurses do to support those receiving palliative care? How do you ensure clear communication and maintain patients’ and families’ preferences? Palliative Care Nursing is essential reading for nursing students, professional nurses and other health and social care professionals providing supportive and palliative care to those with advanced illness or who are towards the end of life. This third edition of the acclaimed textbook has been extensively revised and examines important research studies, key debates around care and strategies to advance palliative care nursing. In four sections, the book covers key elements of nursing practice towards the end of life: • Defining the pall...
