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"A member of the palliative care team meets Alicia for the first time. They meet in the infusion bay, where the thin curtains offer symbolic privacy. Alicia is in her early 60s, and had gone to the doctor with a persistent cough. Subsequent tests revealed metastatic lung cancer. She has just finished her first cycle of first line chemotherapy, which she tolerated well. A quick review of her chart reveals no obvious physical symptoms such as pain or shortness of breath. Her social history is notable for the recent death of her husband. She has one adult child, who lives nearby"--
The long history of medical care for the dying has largely been neglected. It began in 1605 when physicians were challenged to enable persons to die peacefully. Today it includes palliation of oppressive symptoms, emotional and psychological care, and respect for the wishes and cultural backgrounds of patients and families. Especially since the 1990s, it embraces symptom-easing palliation for patients with severe life-limiting and chronic illnesses. Providing a detailed picture of contemporary palliative care, this book chronicles four centuries of the quest for a good death, covering the fight against futile end-of-life treatments, the history of life-extending treatments and technologies, the roles of nurses, the liberation of the dying from isolation in hospitals and hard-won victories to secure patients' right to choose.
A necessary book for healthcare professionals and theologians struggling with moral questions about rationing in healthcare. This book outlines a Christian ethical basis for how decisions about health care funding and priority-setting ought to be made.
Trained as a cultural historian, Thomas R. Cole is one of the most influential scholars of his generation, with his work moving beyond and impacting many other fields and disciplines. His work includes The Journey of Life: A Cultural History of Aging in America, which was nominated for a Pulitzer Prize. Cole also published No Color Is My Kind: The Life of Eldrewey Stearns and the Integration of Houston, creating along with the book an accompanying film, The Strange Demise of Jim Crow, which was nominated for a regional Emmy and a National Humanities Medal. Cole created a number of other films as well. In all of his work, there is an emphasis on religion, spirituality, and moral meaning. Cole is also a Jewish spiritual director, and this work has become a major focus for him in retirement. This edited volume engages or responds to Cole’s work, which spans cultural history, oral history, aging studies, film, medical humanities, religious studies, and more. As such, this book is not about Cole per se, but the impact of his ideas and subsequent inspirations.
A practical guide to help clinicians communicate more effectively with seriously ill patients and their families about what matters most.
This major new work updates and significantly expands The Hastings Center's 1987 Guidelines on the Termination of Life-Sustaining Treatment and Care of the Dying. Like its predecessor, this second edition will shape the ethical and legal framework for decision-making on treatment and end-of-life care in the United States. This groundbreaking work incorporates 25 years of research and innovation in clinical care, law, and policy. It is written for physicians, nurses, and other health care professionals and is structured for easy reference in difficult clinical situations. It supports the work of clinical ethicists, ethics committee members, health lawyers, clinical educators, scholars, and policymakers. It includes extensive practical recommendations. Health care reform places a new set of challenges on decision-making and care near the end of life. The Hastings Center Guidelines are an essential resource.
A collection of essays and meditations by the people who have been most influenced by the life and ministry of Father Hugh F. Crean, who was often described as a “priest’s priest.” With more than twenty of Crean’s original homilies, the book affords parishioners and friends who knew him an opportunity to find comfort in a voice that uplifted and sustained them week after week. Appealing to both the person in the pew and professional minister, Along the Way: The Life, Lessons, and Legacy of Father Hugh F. Crean explores the legacy of Vatican II (1962-1965) and its unfinished agenda. Written by a diverse group of contributors, including noted Church historian David O’Brien and sociologist Mary Johnson, SNDdeN, the essays included in Along the Way challenge readers to reconsider the essence and form of priesthood, religious life, and ministry while pointing to themes Crean delivered throughout his 53 years of ministry. The book was prepared under the auspices of the Saint Augustine Center for Ethics, Religion, and Culture at the College of Our Lady of the Elms in Chicopee, Massachusetts, where Crean served as a faculty member.
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This book will be the first of its kind to offer intensive conversation analysis on patient-clinician interactions in the context of palliative medicine. The book focuses on a series of individual case studies of conversations that revolve, in each case, around one key critical term that is often evoked or understood differently by clinicians and patients.