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The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"
What Do I Do Now: Respiratory Symptoms is the first book of its kind to succinctly describe the palliative care approach to patients experiencing respiratory symptoms throughout their illness trajectory. Dyspnea, also known as breathlessness, is one of the most difficult symptoms to experience and is also one of the most difficult to treat as the evidence-base for this symptom lags behind other prevalent symptoms, such as pain or nausea. This volume brings together expertise from the fields of nursing, chaplaincy, social work, and psychology to address dyspnea from a palliative care context. Covering patients ranging from pediatric to geriatric, each chapter opens with a case study and provides context for the practical clinical content that follows.
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The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pedi...
Winner of the Daughters of the American Revolution’s Excellence in American History Book Award Winner of the Thomas J. Wilson Memorial Prize “Cogent, lucid, and concise...An indispensable guide to the creation of the cabinet...Groundbreaking...we can now have a much greater appreciation of this essential American institution, one of the major legacies of George Washington’s enlightened statecraft.” —Ron Chernow On November 26, 1791, George Washington convened his department secretaries—Alexander Hamilton, Thomas Jefferson, Henry Knox, and Edmund Randolph—for the first cabinet meeting. Why did he wait two and a half years into his presidency to call his cabinet? Because the US C...
A concise and practical guide to caring for children with life-limiting conditions, 'Paediatric Palliative Medicine' covers the common symptoms and challenging issues healthcare professionals are likely to encounter, and includes a detailed drug formulary for quick reference.
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healt...