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They Have No Idea: Love and Desperation in Mothering a Child with Severe Autism and Epilepsy, is a powerful account of a mother’s struggle to understand what it means to be a good mother to her child who struggles with both issues. In this book, Barbara Morrisey bravely pulls back the curtain so others might catch a glimpse of what some families with special needs children experience. The author reveals the distress of learning her son’s diagnosis, the determined efforts she and her husband undertake on his behalf, and the impact this has on their family. She describes the devastation of realizing that their efforts are futile, and the heart wrenching process of deciding to seek an alter...
The book addresses contemporary challenges related to chronicity in the context of life and health. The book is structured across 11 core axes to aid healthcare professionals in understanding the topic. The axes address issues such as health promotion and quality of life, the transition from ephemerality to chronicity throughout life, the presence of chronicity in childhood and adolescence, violence against transgender people, the coexistence of communicable and non-communicable chronic diseases in the community, work-related chronic diseases, chronicity in the elderly, and strategies for sustainable development in this context. It discusses the importance of palliative care for patients facing finitude and explores the role of spirituality in coping with chronicity. In summary, the book aims to present a comprehensive and multidimensional perspective on chronicity, providing valuable insights for the teaching, research, extension, and care sectors.
Beyond the Blue is a book that will inspire you to be a better person. Within its pages, author, autism consultant and mother Gopika Kapoor describes her unique, yet universally shared experiences as the parent of a child with autism. Through the intimate stories of life with her son Vir, she immerses readers in shining moments and dark episodes, brimming with refreshing honesty, sparkling humor and undaunted courage. Beyond the Blue is an indispensable guide for parents of children with autism, whether they are starting out on this journey or have been traveling this path for several years. It provides a road map for parents to negotiate the pitfalls and through the narration of her own experiences, a point of reference for what they might be going through. Above all, Beyond the Blue demonstrates the power of the human spirit to accept and overcome a seemingly unsurmountable challenge with positivity and love.
This book is open access under a CC BY 4.0 license. This handbook synthesizes and analyzes the growing knowledge base on life course health development (LCHD) from the prenatal period through emerging adulthood, with implications for clinical practice and public health. It presents LCHD as an innovative field with a sound theoretical framework for understanding wellness and disease from a lifespan perspective, replacing previous medical, biopsychosocial, and early genomic models of health. Interdisciplinary chapters discuss major health concerns (diabetes, obesity), important less-studied conditions (hearing, kidney health), and large-scale issues (nutrition, adversity) from a lifespan vi...
Living Through Loss provides a foundational identification of the many ways in which people experience loss over the life course, from childhood to old age. It examines the interventions most effective at each phase of life, combining theory, sound clinical practice, and empirical research with insights emerging from powerful accounts of personal experience. The authors emphasize that loss and grief are universal yet highly individualized. Loss comes in many forms and can include not only a loved one’s death but also divorce, adoption, living with chronic illness, caregiving, retirement and relocation, or being abused, assaulted, or otherwise traumatized. They approach the topic from the p...
A gift from the Creator – that is where it all began. The game of lacrosse has been a central element of many Indigenous cultures for centuries, but once non-Indigenous players entered the sport, it became a site of appropriation – then reclamation – of Indigenous identities. Focusing on the history of lacrosse in Indigenous communities from the 1860s to the 1990s, The Creator’s Game explores Indigenous-non-Indigenous relations and Indigenous identity formation. While the game was being stripped of its cultural and ceremonial significance and being appropriated to construct a new identity for the nation-state of Canada, it was also being used by Indigenous peoples for multiple ends: to resist residential school experiences; initiate pan-Indigenous political mobilization; and articulate Indigenous sovereignty and nationhood on the world stage. The multilayered story of lacrosse serves as a potent illustration of how identity and nationhood are formed and reformed. Engaging and innovative, The Creator’s Game provides a unique view of Indigenous self-determination in the face of settler-colonialism.