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We live in a world of science. Yet this is impossible without a legally guaranteed freedom to practise it. Findings with regard to the elements of such freedom can be deduced from an analysis of international and domestic provisions and principles. There are a plethora of international institutions, legal rules and global norms for the purpose of the international governance of science. The institutions and rules are to be interpreted in light of this freedom to guarantee the continuous existence of the knowledge-based society by means of a global administrative law of science. These aspects were analysed in a research project funded by the German Research Foundation. The book’s purpose is to present the jurisprudential results. In addition, empirical results are collected in a freely available database. The study is composed of 5 parts: The Concept of Science/Global Administrative Law/Constitutional Basis: The Freedom of Science/Institutional Design/Governance Mechanisms.
In recent years, questions about democratic influence on science and technology have received much attention. The lesson from the European unrest over GMO is that consumer-citizens will react negatively to being forced to accept the introduction of new, partly untested technologies. A number of political bodies have started to involve citizens and to consider their concerns, attitudes, hopes, and worries in the early stages of the coming nano revolution. This volume is assembles the contributions of experts who analyze a number of these deliberations, mainly in the European Union and the United States. The book analyzes citizen-oriented deliberations along with more stakeholder-oriented deliberations.
As DNA forensic profiling and databasing become established as key technologies in the toolbox of the forensic sciences, their expanding use raises important issues that promise to touch everyone's lives. In an authoritative global investigation of a diverse range of countries, including those at the forefront of these technologies' development and use, this book identifies and provides critical reflection upon the many issues of privacy; distributive justice; DNA information system ownership; biosurveillance; function creep; the reliability of collection, storage and analysis of DNA profiles; the possibility of transferring medical DNA information to forensics databases; and democratic involvement and transparency in governance, an emergent key theme. This book is timely and significant in providing the essential background and discussion of the ethical, legal and societal dimensions for academics, practitioners, public interest and criminal justice organisations, and students of the life sciences, law, politics, and sociology.
Early dystopian science fiction like George Orwell's 1984 or Thea von Harbou's Metropolis show us bleak worlds where capitalism has no boundaries and has corrupted sovereign powers, exploiting the lower classes and benefiting only a few at the top. Political laws and policies related to human life--or the biopolitical--devalue that life, making humanity little more than expendable "machines" producing for capitalism, and capitalism's focus on progress has made it a central concern in much of science fiction. Covering science fiction from the early 1900s to present, this book examines the portrayal of dystopian capitalism and the biopolitical in works like Brave New World and R.U.R., among many others.
An authoritative Handbook which offers a discussion of the social, political, ethical and economic consequences and implications of the new bio-sciences. The Handbook takes an interdisciplinary approach providing a synoptic overview of contemporary international social science research on genetics, genomics and the new life sciences. It brings together leading scholars with expertise across a wide-ranging spectrum of research fields related to the production, use, commercialisation and regulation of genetics knowledge. The Handbook is structured into seven cross-cutting themes in contemporary social science research on genetics with introductions written by internationally renowned section editors who take an interdisciplinary approach to offer fresh insights on recent developments and issues in often controversial fields of study. The Handbook explores local and global issues and critically approaches a wide range of public and policy questions, providing an invaluable reference source to a wide variety of researchers, academics and policy makers.
Prenatal Genetic Testing, Abortion, and Disability Justice explores the intent and effects of prenatal screening in connection to women's bodily autonomy and disability rights, addressing themes at the intersection of genetic medicine, policymaking, critical disabilities studies, and political theory.
This book provides a comprehensive description and ethical analysis of one of the most challenging areas: international health research. Furthermore, it provides a vivid portrait of the current situation of global governance for health research and its main challenges and suggests a comprehensive and universal ethical framework based on the existing theories and frameworks. This work is a must-read for all the students, scholars, professionals, activists, and policy-makers who are involved or interested in the global health research enterprise and its governance and ethics.
This book presents findings from EU (and other) projects on the theme of science in society, focusing on nanotechnology and the potential for democratisation of science. It is based on hands-on studies of a set of deliberative processes analysed by the European Commission’s FP7 NANOPLAT project. With added material in the second edition, the book gives a unique insight into the development of deliberative processes on nanotechnology from the start in June 2004 in Denmark up to the present. The analysis is based on an observation of ‘generations’ of deliberations and it develops the third-generation deliberation, first theoretically and then gets to test it out empirically under the NanoDiode project. In addition, it presents a version of Callon’s ‘hybrid forum’, called HF 2.0, and compares this approach to the deliberations. In light of the RRI approaches, the new concluding chapter considers the potential for a more democratic science through public engagement.