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Self-Management of Young People with Chronic Conditions
This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a compl...
Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions
This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in su...
Culture and Sexual Risk
Brummelhuis and Herdt provide an intense examination of sexual risk and its cultural configurations heretofore missing from the AIDS literature. The chapters on Western gay men speak to the pressing methodological, conceptual and theoretical needs in HIV/AIDS research while providing an understanding and documentation of gay men's lives within the emerging corpus of lesbian and gay studies. Chapters on the Philippines, Brazil, Haiti and Africa explore the cultural, political and economic contexts surrounding the transmission and prevention of HIV/AIDS in these cultures.
Encyclopedia of Case Study Research
This is the authoritative reference work in the field. An interdisciplinary set, it investigates the extensive history, design and methods of case study research.
Congenital Heart Disease and Adolescence
This book provides medical care givers with detailed information on those aspects of adolescence that are of significance in the setting of congenital heart disease (CHD), from anatomic and physiologic changes to behavioral issues. In addition, it explains how care should be organized in order to ensure that the needs of adolescents with CHD are fully met. Both theoretical and practical aspects of the switch from a pediatric to an adult health perspective in CHD patients are outlined in detail, drawing attention to the importance of a structured transition plan and other best practices. As the survival of children with complex CHD improves further, the number of adolescents with CHD will continue to grow. Awareness of the challenges that these patients face is essential if they are to be appropriately prepared to assume adult roles and functioning. Readers will find Congenital Heart Disease and Adolescence to be an excellent source of relevant knowledge and guidance. It has been written for a broad audience, bearing in mind that care in adolescents is an interdisciplinary task involving close collaboration among physicians, specialists, nurses, patients, and relatives.
eHealth voor Zorgprocesinnovatie
De zorgsector wordt door de hervormingen in het zorgbeleid en eisen uit de markt gedwongen om eHealth toepassingen in haar aanbod op te nemen. De transitie gaat verder dan alleen het moderniseren van de technologische middelen. Het zorgproces zelf zal opnieuw vormgegeven moeten worden om beter te kunnen voldoen aan de cliëntenvraag. Het E-book ‘eHealth voor Zorgprocesinnovatie’ van ir. Anneloes Cordia, expert bij Kenniscentrum Zorginnovatie, heeft als doel eHealth en ICT-systemen in de zorg in verband te brengen met de belangrijke kwaliteitsdoelstellingen zoals doelmatigheid en transparantie. Daarnaast biedt het E-book informatie over de manier waarop organisaties met eHealth hun zorgpr...
Living Dangerously
Highly prized biography of one of the Netherlands' most famous and controversial filmmakers.
De betekenis van levensverhalen
Levensverhalen voorzien in een steeds grotere maatschappelijke behoefte, getuige de opkomst van weblogs, de talloze autobiografie en therapeutische toepassingen. Reflecteren op het eigen leven kan troost bieden, kan ouderen en jongeren helpen omgaan met beperkingen, en kan bijdragen aan zingeving en goed sociaal contact. De levensverhalen zelf zijn een rijke bron voor bijvoorbeeld medici, hulpverleners, loopbaan-begeleiders en mantelzorgers.De betekenis van levensverhalen laat zien dat levensverhaalmethoden een plaats in de gezond-heidszorg verdienen. Een gezondheidszorg die aan de verhalen voorbijgaat, wordt een kil instituut waarin veel mensen zich niet herkend en erkend voelen.Naast een b...
Actieve Solidariteit
Gedurende de laatste decennia is de Nederlandse verzorgingsstaat van karakter veranderd. Enigszins chargerend zou je kunnen zeggen dat de verzorgingsstaat uit de jaren zeventig en tachtig een grote mate van passieve, financiële solidariteit vroeg van gemiddelde werkende burgers. Deze burgers betaalden voor verzorgingshuizen, verpleeghuizen, psychiatrische instellingen en sociale werkplaatsen. Kwetsbare medeburgers - psychiatrische patiënten, verstandelijk gehandicapten, dementerende bejaarden - werden opgevangen in instituties, door professionals die daarvoor een salaris kregen. Het grote voordeel van dit systeem van passieve solidariteit was dat de lasten ervan eerlijk werden verdeeld ove...
A Practical Approach to the Care of Adolescents and Young Adults with Cancer
This book discusses the most important practical aspects involved in providing multidisciplinary Adolescent and Young Adult (AYA) services for cancer patients. It draws on international experience in several continents of establishing and running such services and provides a contemporary, practical approach to AYA care based on accumulated experience. It is of interest to those establishing or seeking to improve AYA services as well as those already caring for AYA cance patients. Among topics discussed are incidence trends and treatment pathways, access to clinical trials for adolescents, transition from pediatric to adult services, psychological support and social care as well as survivorship and fertility. This book is of value of those establishing new services, those developing an existing service and those whose work includes the care of AYA patients. It is an important companion for pediatricians, oncologists as well as other medical, nursing and allied health professionals caring for Adolescents and Yound Adults with cancer.
