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Ethical Foundations of Palliative Care for Alzheimer Disease
Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstr...
The Health Care Professional as Friend and Healer
This book illuminates issues in medical ethics revolving around the complex bond between healer and patient, focusing on friendship and other important values in the healing relationship. Embracing medicine, philosophy, theology, and bioethics, it considers whether bioethical issues in medicine, nursing, and dentistry can be examined from the perspective of the healing relationship rather than external moral principles. Distinguished contributors explore the role of the health professional, the moral basis of health care, greater emphasis on the humanities in medical education, and some of the current challenges facing healers today.
A Revised Consent Model for the Transplantation of Face and Upper Limbs: Covenant Consent
This book supports the emerging field of vascularized composite allotransplantation (VCA) for face and upper-limb transplants by providing a revised, ethically appropriate consent model which takes into account what is actually required of facial and upper extremity transplant recipients. In place of consent as permission-giving, waiver, or autonomous authorization (the standard approaches), this book imagines consent as an ongoing mutual commitment, i.e. as covenant consent. The covenant consent model highlights the need for a durable personal relationship between the patient/subject and the care provider/researcher. Such a relationship is crucial given the recovery period of 5 years or mor...
Cultural Proficiency in Addressing Health Disparities
Cultural Competency/Vulnerable Populations
Personhood and Health Care
PERSONHOOD AND HEALTH CARE This book arose as a result of a pre-conference devoted to the topic held June 28, 1999 in Paris, France. The pre-conference preceded the Annual Congress of the International Academy ofLaw and Mental Health. Other chapters were solicited after the conference in order to more completely explore the relation of personhood to health care. The pre conference was held in honor of Yves Pelicier who led so many of our French colleagues in medicine, philosophy, and ethics as Christian Herve notes in his Tribute. As health care is aimed at healing persons, it is important to realize how difficult it is to construct a theory of personhood for health care, and thus, a theory ...
Changing Moral Focus of Newborn Screening
This is a print on demand edition of a hard to find publication. Nearly 4 million newborns undergo genetic screening (GS) every year in the U.S. Until recently such GS was limited to diseases that were well understood and for which effective treatments were available. Now, however, most mandatory GS programs also test for diseases that are not well understood and for which there is no available treatment. This white paper describes how the change in policy to include GS for untreatable as well as treatable diseases came about. It provides basic info. about the techniques of GS, and the practical and ethical choices parents must face. The Council believes that the potential benefits of mandatory, population-wide newborn GS for diseases for which there is no current treatment are outweighed by the potential harms.
Guide to Ministering to Alzheimer's Patients and Their Families
Learn how to develop an effective Alzheimer’s ministry. The Guide to Ministering to Alzheimer's Patients and Their Families examines the importance of spirituality in dealing with the everyday challenges of this mysterious disease. Not a “how-to” manual with step-by-step instructions or tried and true formulas, this unique book instead examines the essential elements of ministering to dementia patients based on the first-hand accounts of family members living through pain and uncertainty. The book explores the stages of Alzheimer's, grief and guilt, available resources, and implications of spiritual care for patients and families. It is equally useful as a textbook for graduate and und...
Is There a Duty to die?
The question of whether there might be a duty to die was first raised by Margaret Battin in 1987 in her ground-breaking essay, "Age Distribution and the Just Distribution of Health Care: Is There a Duty to-Die?" In 1997 the issue was reprised when two new articles appeared on the topic written by John Hardwig and the other by former Colorado Governor Richard D. Lamm. Given the renewed interest in the topic, as well as its undeniable importance, Biomedical Ethics Re views sought to initiate an in-depth discussion of the issue by soliciting articles and issuing a general call for papers on the topic "Is There a Duty to Die?" The twelve articles in this volume represent the ultimate fruits of t...
Euthanasia and Physician-assisted Suicide
A concise overview of the history and arguments surrounding euthanasia and physician-assisted suicide.
The Moral of the Story
The contributors to The Moral of the Story, all preeminent political theorists, are unified by their concern with the instructive power of great literature. This thought-provoking combination of essays explores the polyvalent moral and political impact of classic world literatures on public ethics through the study of some of its major figures-including Shakespeare, Dante, Cervantes, Jane Austen, Henry James, Joseph Conrad, Robert Penn Warren, and Dostoevsky. Positing the uniqueness of literature's ability to promote dialogue on salient moral and intellectual virtues, editor Henry T. Edmonson III has culled together a wide-ranging exploration of such fundamental concerns as the abuse of authority, the nature of good leadership, the significance of 'middle class virtues' and the needs of adolescents. This collection reinvigorates the study of classic literature as an endeavor that is not only personally intellectually satisfying, but also an inimitable and unique way to enrich public discourse.
