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Patient engagement in healthcare: a preliminary set of measures to evaluate patient engagement in the European Reference Networks
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed b...
Lenya, the Legend
Born Karoline Blamauer in 1898, Lenya began her career as an actress and dancer in Zurich. In 1920's Berlin she met and married the young composer Kurt Weill, and the two of them brought their talents to American theater when they left Nazi Germany. This first visual biography of the extraordinary performer is an intimate and revealing portrait that Lenya fans and theater buffs won't want to miss. 80 color photos. 350 illustrations.
