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Patient engagement in healthcare: a preliminary set of measures to evaluate patient engagement in the European Reference Networks
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed b...
Intravenous Immunoglobulins in Dermatology
This is the first book to bring together the developments in this area. With full colour throughout, each chapter focuses on clinical differentiation and pathophysiology and provides key laboratory and clinical observations. In addition, there is a brief summary of current treatment options.
Atlas of Ulcers in Systemic Sclerosis
This Atlas examines skin ulcers in patients affected by systemic sclerosis. Although they are not life threatening, digital ulcers cause enormous pain, impact function and quality of life, and can lead to serious local complications such as gangrene, osteomyelitis, and permanent tissue loss. Knowledge and understanding of these ulcers is pivotal in everyday practice in order to arrive at an accurate early diagnosis, a correct analysis of ulcer characteristics, and an appropriate direct and systematic treatment. To that end, this book describes all the major characteristics of skin ulcers in systematic sclerosis, including classification, evaluation, and categorization. Richly illustrated for practical use, Atlas of Ulcers in Systemic Sclerosis: Diagnosis and Management is an essential resource for physicians and related professionals, residents, and graduate students in rheumatology, dermatology, and angiology.
Archivio storico italiano
The 1st series is a collection chiefly of medieval documents, supplemented by the Appendice in 9 vols. containing minor documents, letters, bibliographical and biographical notices. Beginning with the new series in 1855 the Archivio contains Documenti e memorie, Rassegna bibliografica, Necrologie correspondenza, annunzi bibliografici, etc.
Clinical Practice Guidelines We Can Trust
Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiqu...
The Atlantic Forest of South America
This is a detailed assessment of the state of biodiversity in the Atlantic Forest. Separate sections examine each of the three countries that are home to the forest, beginning with a brief overview that explores the dynamics of biodiversity loss in that country and outlining the topics to be addressed.
Capitalism and Environmental Collapse
This book intends to be an alert to the fact that the curve measuring environmental costs against the economic benefits of capitalism has irreversibly entered into a negative phase. The prospect of an environmental collapse has been evidenced by the sciences and the humanities since the 1960s. Today, it imposes its urgency. This collapse differs from past civilizations in that it is neither local nor just civilizational. It is global and occurs at the broadest level of the biosphere, accelerated by the convergence of different socio-environmental crises, such as: Earth energy imbalance, climate change and global warming Sea-level rise Decrease and degradation of forests Collapse of terrestri...
