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Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed b...
This is the first book to bring together the developments in this area. With full colour throughout, each chapter focuses on clinical differentiation and pathophysiology and provides key laboratory and clinical observations. In addition, there is a brief summary of current treatment options.
This Atlas examines skin ulcers in patients affected by systemic sclerosis. Although they are not life threatening, digital ulcers cause enormous pain, impact function and quality of life, and can lead to serious local complications such as gangrene, osteomyelitis, and permanent tissue loss. Knowledge and understanding of these ulcers is pivotal in everyday practice in order to arrive at an accurate early diagnosis, a correct analysis of ulcer characteristics, and an appropriate direct and systematic treatment. To that end, this book describes all the major characteristics of skin ulcers in systematic sclerosis, including classification, evaluation, and categorization. Richly illustrated for practical use, Atlas of Ulcers in Systemic Sclerosis: Diagnosis and Management is an essential resource for physicians and related professionals, residents, and graduate students in rheumatology, dermatology, and angiology.
The 1st series is a collection chiefly of medieval documents, supplemented by the Appendice in 9 vols. containing minor documents, letters, bibliographical and biographical notices. Beginning with the new series in 1855 the Archivio contains Documenti e memorie, Rassegna bibliografica, Necrologie correspondenza, annunzi bibliografici, etc.
Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiqu...
'Integrative Environmental Medicine' looks at the history and changing landscape of environmental issues in the United States, including water supply, air quality, extensive plastic pollution, harmful chemicals in cleaning and personal care products, radiofrequency radiation, food additives, pesticides, and medications
The planning, production and cultural development of a company that has been one of the keystones of Italian design for almost sixty years. Writing the history of Tecno, a company founded in 1953 by the Borsani brothers, does not mean just investigating the evolution of a significant player in the industrial production of furniture, but also tracing out a fundamental chapter in interior design at a global level. Many Tecno projects have been designed by some of the most prominent international architects and designers, including Vico Magistretti, Roberto Mango, Robin Day, Gio Ponti, Mario Bellini, Norman Foster, Ricardo Bofill, Jean-Michelle Wilmotte, Emilio Ambasz, Giorgetto Giugiaro, Gae A...