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When television producer Colin Ludlow was admitted to hospital for an operation, he expected to be home in ten days. In the event, he ended up staying for five months, nearly died on several occasions, contracted MRSA, and was still recovering from his experiences more than three years later.In Shadows in Wonderland he tells his story, and takes a fascinating philosophical journey through chronic illness as he explores its wider significance. The book is a moving account of how the author pieced together the shattered fragments of his life and sought to make sense of them again. It is the record of a quest - which we all face - for health and wholeness in a fractured, disjointed world.
The only complete, scientifically rigorous, fully integrated reference giving a wide ranging and in-depth perspective on cerebral palsy and related neurodevelopment disabilities. It considers all aspects of cerebral palsy from the causes to clinical problems and their implications for individuals. Leading scientists present the evidence on the role of pre-term birth, inflammation, hypoxia, endocrinological and other pathways. They explore opportunities for neuroprotection leading to clinical applications. An international team of experts provides clinicians and researchers with key information on the mechanisms underlying impairments in movement, development, cognition, communication, vision...
Enabling Participation provides a key reference work for health and education practitioners who wish to optimise outcomes for children, young people and families where there is an individual with a childhood onset neurodisability. By focusing on participation -- what is it, how to measure it and how to influence it – the book aims to support professionals to utilise the most recent developments in the field. Written in five parts, the book provides the reader with knowledge about the concept of participation; detailed understanding of how varying contexts influence participation outcomes; how to measure participation as an outcome and as a process; how to intervene to promote participation outcomes; and future directions and challenges. Chapters provide diverse examples of evidence-based practices and are enriched by scenarios and vignettes to engage and challenge the reader to consider how participation in meaningful activities might be optimised for individuals and their families. The book’s practical examples aim to facilitate knowledge transfer, clinical application and service planning for the future.
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This book is concerned with one of the major areas of misdiagnosis in medicine today. It has been estimated that as many as thirty percent of children typed as "epileptic" when presenting with loss of consciousness, falls or other paroxysmal episodes have, in fact, non-epileptic attacks. Yet because of the stigma attached to this label, and the frequent side effects of anti-epileptic drugs, it is important that the alternative etiological mechanisms be recognized. The most common of these conditions, the vagalmediated anoxic seizure or fainting fit, is so frequent that it will be encountered by anyone involved in the practice of clinical medicine in its widest sense. These seizures are discu...
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
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This volume should not be required reading, but required study for everyone offering care in America. The biggest complaint about care in the USA is that nobody listens. Tom Balles book lays out, in simple detail, the basic human habits that we lost in our addiction to technology. Care is about individuals caring for other individuals. ROBERT M. DUGGAN, MA, MAc (UK), Dipl Ac, (NCCAOM), author of Common Sense for the Healing Arts and Breaking the Iron Triangle: Reducing Health-Care Costs in Corporate America Becoming a Healing Presence is simply elegant. Tom Balles calls all those who offer care to a high standard to be present, with senses wide open. He offers uncomplicated practices for exp...