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Road Map to Holland
  • Language: en
  • Pages: 304

Road Map to Holland

  • Type: Book
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  • Published: 2008-04-01
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  • Publisher: Penguin

An exceptional memoir that provides emotional insight and practical advice. It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast... When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

Road map to Holland : how I found my way through my son's first two years with Down syndrome
  • Language: en

Road map to Holland : how I found my way through my son's first two years with Down syndrome

  • Type: Book
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  • Published: 2008
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  • Publisher: Unknown

Montana wife and mother, Jennifer Groneberg, traces the life-changing realisation after the premature birth of her twin boys that one of them, Avery, has Down syndrome. Utterly unprepared for the emergency C-section of the seven-week-early preemies, Groneberg and her writer husband, Tom, the parents of a four-year-old, are devastated by the news about Avery, and they must gradually alter their easygoing future plans about raising their kids. They reject the notion of adoption, suggested by a well-intentioned nurse at the hospital where the babies are in the neonatal intensive-care unit, and embark on an exhaustively trying, ultimately enlightening journey to care for the needy babies, especially Avery, and educate themselves about his condition. Rising from the shame of feeling that their family is broken, and letting slide hurtful comments by a grocery-store clerk or neighbor, Groneberg devoured books and information from the Internet, and began to foster their son's development by seeking out physical therapists and specialists. Small gains in Avery's motor skills were causes for celebration, and the beginning of speech the greatest gift the parents could ask for.

Eros: Faces of Love
  • Language: en
  • Pages: 173

Eros: Faces of Love

The word, Eros, names not only a Greek god of love, but also an asteroid! What does an ecstatic filled epiphany of empathic compassionate fulfillment have to do with a hard and lifeless, rocky chunk of matter? Eros: Faces of Love fearlessly enters the spiral labyrinth of this paradox. With penetratingly tender reflection and bold confessional scrutiny, the author ponders whether love is the arrival of a “longed for gift” or the disaster of “an unexpected meteor”. As sensual descriptions reveal the ecstatic delight of “islands of paradise”, passionate metaphors uncover rocky “hidden coves of scorn”. Can unsettled dreams temper the hectic race to make space ‘to love’? Can fond remembrances call one home to rest and simply let space open ‘for love’? Eros: Faces of Love opens the space of the heart for both the lover and the beloved to find out.

My Heart's First Steps
  • Language: en
  • Pages: 260

My Heart's First Steps

  • Type: Book
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  • Published: 2003-11-01
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  • Publisher: Adams Media

In this heartwarming, inspiring collection, mothers and fathers share their touching, occasionally bittersweet experiences as parents. From the miracle of birth to the wonder of baby's firsts to the highs and lows of a child asserting his or her independence, the poignant memories recounted in My Heart's First Steps will be cherished forever. Book jacket.

Year My Son and I Were Born
  • Language: en
  • Pages: 341

Year My Son and I Were Born

A brutally honest yet beautiful journey of how one mother learned to bond with her disabled son and gained a new perspective on life.

Bird's Eye View
  • Language: en
  • Pages: 227

Bird's Eye View

Bird’s Eye View is a compelling book of stories sharing a life lived in health care. Written for health professionals -- but accessible to all readers -- each chapter offers insight into how it feels to be a vulnerable patient. Poignant and provocative, this unique book highlights the patient and family experience and includes practical wisdom to inspire us all.

This Lovely Life
  • Language: en
  • Pages: 273

This Lovely Life

  • Type: Book
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  • Published: 2009-07-23
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  • Publisher: HMH

One woman’s true story of raising a child born three months premature—“propulsive, startling, and vivid, like motherhood itself” (Meg Wolitzer, New York Times–bestselling author of The Female Persuasion). Vicki Forman gave birth to Evan and Ellie, weighing only one pound each, at twenty-three weeks’ gestation. During the delivery she begged the doctors to “let her babies go”—knowing all too well that at their early stage of development they would likely die and, if they survived, would have a high risk of permanent disabilities. However, California law demanded resuscitation. Her daughter died just four days later; her son survived and was indeed multiply disabled: blind, n...

The Year My Son and I Were Born
  • Language: en

The Year My Son and I Were Born

  • Type: Book
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  • Published: 2009
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  • Publisher: Unknown

"How the birth of a disabled son led one mother to transcend her deepest fears and embrace life in all its glorious imperfection."--Page 4 of cover.

Down Syndrome
  • Language: en
  • Pages: 591

Down Syndrome

  • Type: Book
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  • Published: 2008-11
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  • Publisher: Lulu.com

People with Down syndrome can do a lot; this is the reality. We will share with you, in this book, stories from people with Down syndrome who have excelled in many areas and live lives like many other people who do not have Down syndrome. We will also share with you stories about those with Down syndrome who have had medical problems and issues to deal with, yet give joy to those they come in contact with. -- Preface.

Serendipity
  • Language: en
  • Pages: 241

Serendipity

  • Type: Book
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  • Published: 2015-09-03
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  • Publisher: iUniverse

Serendipity: Moments in time and place A diverse blend of storytellers from around the world share their experiences with the mystery, magic, and power of serendipity.