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Towards an Ethic of Autism
Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtfu...
Epigenetics and Responsibility
EPUB and EPDF available Open Access under CC-BY-NC-ND licence. This thought-provoking collection redefines the boundaries of moral responsibility. It shows how epigenetics reveals connections between our genetic make-up and our environment. The essays suggest a shift in focus from individual to collective responsibility.
Parental Responsibility in the Context of Neuroscience and Genetics
Should parents aim to make their children as normal as possible to increase their chances to “fit in”? Are neurological and mental health conditions a part of children’s identity and if so, should parents aim to remove or treat these? Should they aim to instill self-control in their children? Should prospective parents take steps to insure that, of all the children they could have, they choose the ones with the best likely start in life? This volume explores all of these questions and more. Against the background of recent findings and expected advances in neuroscience and genetics, the extent and limits of parental responsibility are increasingly unclear. Awareness of the effects of p...
Maternal Abandonment and Queer Resistance in Twenty-First-Century Swedish Literature
This book questions why so many mothers leave their families in twenty-first-century Swedish literature, analyzing literary representations of maternal abandonment in relation to sociopolitical discourses. The volume draws on a queer-theoretical framework in order to highlight norm-critical dimensions, failure, and resistance in literature about motherhood. Jenny Björklund argues that novels about mothers who leave can be understood as ways to problematize and challenge Swedish-branded values like gender equality and a progressive family politics that promotes ideals of involved parenthood, the nuclear family, and pronatalism. The book also raises questions beyond the Swedish context about maternal ambivalence, family politics, and privilege and discusses how literature can work as resistance and provide alternatives to the current social order.
Principles and Practice in Biobank Governance
Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Citizenship in Organizations
This book explores the concept of citizenship, and the role that organizations can or do play in its creation, stimulation and control. Offering multiple organizational perspectives (private and public organisations) and their relation to several types of output (citizenship, poverty, profit, employability), this work presents a rich collection of philosophical thoughts and practices on the subject of citizenship within and without the organizational context. Particular attention is given to this human aspect, an element of unpredictability, a gut feeling, the unknown... something immeasurable that plays a part in human relations and how they organize themselves. Citizenship in Organizations casts new light on the impact of organizations to the notion of citizenship.
Gender and Genes
This Yearbook of Women's History (Jaarboek voor Vrouwengeschiedenis) is dedicated to Gender and Genes. Intruding upon our everyday lives, the world of DNA, genes and genomics has become a challenging field of research, both clinical and biomedical as well as socio-cultural. It is also a challenging topic for a Yearbook which traditionally focuses on women and gender from a historical point of view. Gender issues are part and parcel of genes and genomics in scientific research and socio-cultural discourses and representations. Current literature on genes and genomics does not abound in analyses of biomedical and socio-cultural realms where gender aspects are played out and exchanged. This Yearbookmay thus contribute to a field of analysis which contextualizes history from the viewpoint of current biotechnological developments. This volume contains articles on medical cases (reproductive testing and the case of the sex chromosomes, and framing cancer risk in women and men), cultural representations, a portrait of female scientist Rosalin Franklin and interviews with feminist science philosophers Katarina Karkazis and Donna Dickenson.
The Compact Compendium of Experimental Philosophy
The relatively new movement of Experimental Philosophy applies different systematic experimental methods to further illuminate classical philosophical issues. This book brings together experts from the field to give the reader a compact yet extensive overview, offering a ready at hand introduction to the state of the art.
The Ethics Gap in the Engineering of the Future
Challenging readers to think about our moral compasses and the multifaceted impact of technology on our everyday lives, this collection is an insightful look into engineering ethics and the technology of tomorrow.
Screening the Single Euploid Embryo
Intended for readers with a background in fertility medicine as well as those less familiar with IVF, this comprehensive work presents an update on preimplantation genetic testing to enable single embryo transfer (SET). An international cast of contributors explains the treatment sequence—from ovulation induction to luteal support—aiming to transfer only one euploid embryo. Applications of molecular techniques for gamete and embryo assessment are fully detailed, with a focus on the strengths and limitations of each. In addition, expert commentary is shared across a range of regulatory challenges associated with embryo screening and cryopreservation. As access to advanced reproductive technology increases against a sharper background of healthcare reform, clinicians, economists, bioethicists and legislators alike will find this new volume relevant and highly accessible.
