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PERSPECTIVA BIOPSICOSOCIAL DE LAS ENFERMEDADES RARAS: EL SÍNDROME DE WOLFRAM COMO MODELO
Las Enfermedades Raras (ER) son un grupo heterogéneo de patologías que comparten su baja prevalencia y además una serie de características comunes entre las que se incluye su elevada morbimortalidad y discapacidad. La mayoría de las personas afectadas presentan retraso en el diagnóstico, falta de información, incertidumbre ante el diagnóstico, desconocimiento general de la sociedad etc. Esta obra ayuda a especialistas y a legos a conocer las enfermedades raras y, más concretamente, el Síndrome de Wolfram
Enfermedades raras. Contribuciones a la investigación social y biomédica.
Las enfermedades de baja prevalencia se han convertido en uno de los nuevos retos sociales. La investigación social no puede obviar esta realidad y debe enfrentarse a este complejo entorno social y biomédico. El contexto social de las patologías raras es complejo a causa de la gran cantidad de enfermedades que se encuentran dentro de este gran cajón de las enfermedades de baja prevalencia, de la diversidad de síntomas y efectos, de las carencias de tratamientos, de los problemas en el diagnóstico, de la complejidad en las interacciones moleculares de nuestro organismo, de las consecuencias psicosociales, del impacto social y educativo, etc. En el presente trabajo se pretende dar luz a algunos de estos aspectos.
The Case for Marriage
A groundbreaking look at marriage, one of the most basic and universal of all human institutions, which reveals the emotional, physical, economic, and sexual benefits that marriage brings to individuals and society as a whole. The Case for Marriage is a critically important intervention in the national debate about the future of family. Based on the authoritative research of family sociologist Linda J. Waite, journalist Maggie Gallagher, and a number of other scholars, this book’s findings dramatically contradict the anti-marriage myths that have become the common sense of most Americans. Today a broad consensus holds that marriage is a bad deal for women, that divorce is better for childr...
WHO Guidelines on Safety Monitoring of Herbal Medicines in Pharmacovigilance Systems
Safety is a fundamental principle in the privision of herbal medicines and herbal products for health care and a critical component of quality control. These guidelines provide practical technical guidance for monitoring the safety of herbal medicines with pharmacovigilance systems.
Strategic Public Relations Leadership
Public relations professionals are operating in an increasingly challenging and complex environment. Pressures from outside the organisation include new accountabilities, empowered stakeholders, increased public cynicism and a new communication landscape. Internally, there are increasing demands to demonstrate a strategic contribution, alongside a requirement to coach and counsel senior managers exposed to these environmental pressures. This revised and updated edition provides a framework to enable public relations professionals to clearly articulate and demonstrate their own contribution to organisational effectiveness, while also setting out the specific capabilities public relations lead...
The Basques of New York
Generations of Basques in New York have vibrantly exercised their culture, language, values, and traditions, transmitting to their children a robust sense of ethnic identity. In today's world of globalization it is often assumed that particular communities are disappearing as a consequence of the factors of homogenization. However, the Basques have proved this false. Depicting Basque mutual aid societies, language courses, musical and dance troupes, cuisine classes, community activities, sport, political involvement, and ties to homeland institutions are just a few of the ingredients which mix to compose the chapters of this work. Readers will learn about the history and reasons why Basques ...
Musical Migrations
A dynamic and original collection of essays on the transnational circulation and changing social meanings of Latin music across the Americas. The transcultural impact of Latin American musical forms in the United States calls for a deeper understanding of the shifting cultural meanings of music. Musical Migrations examines the tensions between the value of Latin popular music as a metaphor for national identity and its transnational meanings as it traverses national borders, geocultural spaces, audiences, and historical periods. The anthology analyzes, among others, the role of popular music in Caribbean diasporas in the United States and Europe, the trans-Caribbean identities of Salsa and reggae, the racial, cultural, and ethnic hybridity in rock across the Americas, and the tensions between tradition and modernity in Peruvian indigenous music, mariachi music in the United States, and in Trinidadian music.
Dementia and Memory
A negative effect of the ageing population is that more individuals are experiencing cognitive decline and some form of neurodegenerative disease. With the number of people experiencing dementia likely to double in the next 20 years, this change in society presents one of greatest challenges facing public health personnel in the 21st century. The aim of this volume is to describe research that is in progress, and the major findings that have been obtained in the scientific study of dementia. The chapters in the first section of the book focus upon early signs of dementia, and consider several approaches to finding early cognitive signs and biological markers of dementia. The second section c...
